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Handling Adversity

Ist Prize for 10th Graders at Chinmaya Mission Alpharetta, Writing competition 2021

Adversity is not a new concept for me as I have been battling with difficulties all my life.  Most people understood the gravity of adversity last year due to Covid Pandemic that devastated the entire world.  Due to speech and developmental impediments, I have had to learn to deal with adversity from an incredibly early age and I was well equipped to handle my life turning upside down due to Covid. 

 The Gita specifies some useful tips on handling difficulties. The Gita says to look at each difficulty as an opportunity to move ahead with new resolve and goals.  The Gita also advises that suffering is not permanent, and we can transform our inner lives to effectively be in control of our destiny.  

I have developed my own strategies to battle against adversity. If I hear something negative being said about me in front of my face, I try to let it roll off my mind without affecting my soul. I think of my happy place like the ocean, is calm and peaceful despite all the waves that constantly rise on its surface. Most people disbelieve in my ability to accomplish anything meaningful in my life. I use those derogatory opinions to inspire myself to work harder every day and prove all my critics wrong. 

This past year my life was turned upside down just like everyone else in the global environment. Due to the Covid pandemic, all schools switched to virtual learning. All social events were cancelled, media created a frenzy of fear with reports of hospitalizations and deaths of Covid victims. My parents became overly concerned about staying healthy and I was cut off from most face-to-face contact with anyone else other than immediate family. l felt very frustrated and sometimes angry at these sudden restrictions imposed on me. Virtual school was also hard due to having to sit in front of the computer for many hours which I was not used to as my school day incorporated a lot of walking and other social interactions. 

My teachers, mother and I sat down and made an action plan for my mental and physical health while the Covid raged outside and continued with its path of destruction. By physically isolating ourselves we had the mental peace of not worrying about being exposed to Covid and could use our energies for positive goal setting.  

Firstly, I needed a plan to keep my body regulated through the day with frequent movement breaks.  We devised three daily workouts, one in the morning before 10am at the treadmill at home, a midday workout outside to get fresh air and sunshine as available, and a final workout in the evening with an experienced coach online. For social connections, my teacher offered a weekly walk and talk session outside in the fields of my High School. On weekends, we went to Lake Lanier or a day trip to the mountains to appreciate the beauty of nature. On holidays breaks, I connected with my friends online to play games on Kahoot and discuss current events. 

I decided to do something for my friends as well ease their loneliness during Covid. One of my mother’s co-workers runs a non-profit organization called Inspiring Together. I helped to write a presentation to propose a Friendship club with typical teenagers and their special friends to meet once a week to discuss common topics of interest. Luckily, my proposal was accepted, and a Friendship Club has started where special needs teenagers can feel more included in the community as a whole and get an opportunity to discuss their ideas with their teen counterparts. I am extremely excited about this program and to be able to contribute to the community for a higher ideal. 

Thus, I would say that adversity closes a lot of doors but if we can look at every obstacle as an opportunity then it can be life changing. There have been days that I have felt sad and frustrated, but they are exceedingly rare. I have been remarkably busy working on enhancing my academic and vocational skills and trying to help my community friends to also cope with loneliness. Also based on the Gita I know adversity is not permanent and patience as well as restraint is the key to sail through the tough times. Sometimes I think of Anne Frank and her family hiding out in a small cell for 2 years with her family during the Nazi regime, fearing for their lives every day. I have the freedom to go outside daily to lower the chains that bound me. Even though Anne Frank’s story ended very tragically just 2 weeks before the end of World War II, I am hopeful for a successful conclusion in my story where me and my family will be healthy, and I can go back to school in the Fall of 2021. 

Rishi with his 1st place trophy after competing with typical 10th Grade peers
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Ode to River Trail!

By Rishi Jena

Oh, River

I hear your urgent waters rippling through the woods. 

I see your sandy banks eroding from the relentless rain. 

I watch your swelling body break all barriers to freedom. 

Oh, Birds

I hear your mellifluous songs penetrating through the woods. 

I see blues, blacks. reds and browns merging in harmony. 

I watch your craftmanship in building meticulous dwellings. 

Oh, Trees! 

I hear your leaves whispering secrets through the woods. 

I see you bent over the water drenched with thirst. 

I watch your fragrant flowers falling to a carpet beneath my feet. 

Oh, River Trail! 

I walk across your bosom every sunrise or sunset! 

I feel your loving embrace engulfing my parched soul.  

I marvel at your serene beauty morning, noon and twilight. 

I observe your ever-changing costumes as the seasons roll by 

Stay untouched by disease or fire, pure and innocent for eternity! 

Chattahoochee Point River Trail 

Rishi Jena is a 10th Grade student at Keystone Academy and Lambert High School.  He has been walking on the Chattahoochee River Trail in suburban Atlanta since April 2020 when Covid hit the USA. The beauty of nature has inspired him to keep his spirits up during the tough period of isolation from human contact. 

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The Pandemic Shines a New Light on Humanity

The corona virus has robbed us of a normal lifestyle. However there is an opportunity to discover myself in a new light. There is joy in everyday life that we forget to realize during so called “normal life”.

School is fun and gives energy for a new beginning to learning every day. The friendships at school are also valuable assets in my life. School shutdown has created a void in my life that is hard to fill. I also miss social events outside of school like Bal-Vihar, special fit and Yoga class.

The isolation has forced me to think harder about what is most important in life. The love shared between friends and families keeps us perfectly grounded during difficult times. Video chats with people I care for has kept me from mental lows. Watching favorite movies on Netflix has entertained me.

Love and life are inseparable. In difficult times everyone is interdependent. We are all members of the vast universe. We should unite to fight against the virus and help those in need in every way possible and not focus on our own little inconveniences.

Life Without Fear

Fear is a loathsome emotion that engulfs everyone’s life and makes It difficult for them to achieve their full potential in this lifetime.We feel afraid because our mind and body are not able to process the energy that Is flowing through our Personal space.

I feel fear is very destructive to point out the obvious.

 To conquer fear we need to live the life of a Yogi where the mind is powerful and above all feelings of anger, fear, sorrow and hate.

Life empowers everyone to assimilate all their senses of fear and submitting to a higher power. The life of a Yogi is very austere and disciplined. They eat healthy food, they practice yoga and meditation and they help all that are in need of guidance.

 Higher power is the omnipresent God. His healing powers are present in all of our bodies. When fear strikes I silently chant OM 25 times to calm my mind and body and the fear is replaced with God’s blessings.

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Rishi with teachers from Chinmaya Mission Alpharetta who have exposed him to spirituality in daily life.

 

 Life is a blissful experience without the pervasive intrusion of fear. I fear low self-esteem that will ruin my life and not allow me to meet my goals of graduating from college and pursuing a career in math and science. I pray to god daily for self-confidence and blessings.

 To be fearless is a blessing from God. The blessing comes after a lot of prayers, discipline and good deeds for those in need. A calm mind, healthy body and submission to a higher power are in my opinion the top qualities to lead a fruitful life in the absence of fear. So we should not let the poison of fear, worry and anger lower the quality of  our life.

 

 

Functional Spirituality to improve Quality of Life

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Why is spirituality important 

Rishi Jena and Allen Joseph

What is God?

Rishi : God is inside you and around you all the time.

I feel his presence all the time. 

I can hear him calling my name at night when everyone is sleeping.

His blessings are with me all the time because he protects me from all dangers .

I can see his light shining bright in the top of my head.

I feel safe and protected by his calming presence. 

What spiritual experience did you have recently?

Allen : First communion.

Which denomination is that Rishi?

 Denomination is Catholics 

What training did you receive?

Allen : Training is intensive.

Rishi, which spiritual class did you attend?

Rishi : Bal Vihar class.

Hindu culture and new way of living was discussed at the class.

What did you learn from your class?

Allen : Religion and precious words.

Did you make friends?

Allen : Good friends lose lifelong memories by ignoring.  

How to get closer to god?

Rishi : Temple is a peaceful place to think of god and yearn for his presence in my life.  I want God to form good relations with me and help me develop my skills for a successful life.

What spiritual activities do you enjoy?

Rishi : Temple,  yoga, chanting, 

How can it help with quality of life ?

Rishi : The helpful enjoyment from God chosen activities help to calm the mind and body.

Why are you so emotional?

Rishi : God has made me that way. I like touching people to feel their vibrations and that makes me peaceful.

What do you like to do to develop spiritually

Rishi : The connection with God is very powerful to keep me positive and full of joy.  The visits to the temple are very people oriented to help me grow spiritually.

Why is spirituality and faith so important?

Rishi :The connection to God is very helpful to give a sense of peace and calmness in a very hurried environment.

Inclusion, Performance and Communication in Middle School

Classroom

The classroom is very intimidating. There is a lot of noise and clutter which is very painful to the sensory system. Anxiety builds up as data is being taken on responses and every mistake is being counted.

The body starts becoming petrified and impulses take over. My brain is not in control of my body in that precise moment of extreme fear, I start pointing arbitrarily at objects and letters.

In order for things to improve, I need a quiet, uncluttered environment with a trusted communication partner. Testing in the school is the very frightening experience due to people judging what I know. They always seem to think I am an idiot, whatever I do makes no difference. This label has stuck to me for many years in the school system. I need a trusted communication partner to break through the boundaries that the system has inflicted on me.

 

Communication partner

The communication partner should presume competence. They should also understand the brain, body disconnect. They should understand that sometimes the body does something different than what I want it to do.

 

Special Teachers

Special teachers believe in their students. Importantly peaceful teachers inspire confidence in students. The teacher’s demeanor should have a calming effect on the student. The teacher should understand which channel the student uses to learn and utilize their strengths. E.g. I learn using the auditory channel. Perfect teachers don’t badger their students but motivate them for success.

 

Ideal Education environment

I want to be educated with other regular kids, regular kids enjoy more freedom that autistic students. They have more freedom to express their voice and get their opinions heard. I can now control my body much better after being in a resource class all of last year. I don’t believe I will be disruptive to the class.

I would be most effective with a communication partner through the day so I can express my thoughts and opinions. The day should be broken up to include time for exercise.  For example, I like to walk for 5 minutes on the treadmill every hour. This helps me feel calm and regulated.

I would like the teachers and fellow students to honor my intelligence.

Education is life saving for me, like oxygen for my soul. Please don’t deny me my fundamental right for a fair education as being offered to all regular students of my age group.

Middle School – Best of worst years of your life?

Every time in life is precious. The time in middle school is enjoyable to transition from being a little boy to a teenager. Teenagers are more rocking in their independence. I can do more things by myself like folding laundry, washing dishes and making pancakes. I can make more decisions like choosing songs on the iPAD or what activities I want to participate in. I want to choose my own clothes and my friends going forward to gain more autonomy.

 

How do you handle limited access to Letterboard in the school environment?

I am trying to raise awareness about using letterboards and keyboards in the school environment.

I am also trying to convert my thoughts to universally accepted speech. I have to compete with other students in a resource class so I have to work very hard to be understood.

Ms Sharon Wexler has been helping me for many years to be clear in my speech.

Growth Mindset

MY MINDSET IS DEPENDENT ON POSITIVE THINKING. THAT IS MANDATORY FOR ME TO ACCOMPLISH ANY OF MY DREAMS. TAKE IT FROM ME, LIVING WITH A GROWTH MINDSET IS HEALTHIER.

Concluding Thoughts

TIME FOR THOSE THAT ARE STUCK WITHOUT A RELIABLE FORM OF COMMUNICATION TO WORK TOGETHER TO BE HEARD. TAKING THE TIME TO FREE OUR DEEPEST, PROFOUND THOUGHTS WILL FORCE JUDGMENTAL INDIVIDUALS TO QUESTION THEIR REALLY HARSH MISCONCEPTIONS.

Thanks for reading and Sharing

Rishi

This is My Story

I am RISHI JENA

I am 13 years old.

When people meet me, I hope they see a smart boy, kind and funny.

I mostly talk on a LETTERBOARD.

I learned to communicate using a Letterboard only a year back.

MOST OF MY LIFE I HAVE SILENT, JUST LISTENING TO EVERYONE TALK.

They talked about my disabilities.

Meanwhile I learned to listen and store information in my head.

I was storing information to communicate later on.

When I was younger, I tried to talk but the words did not come out. Now I am able to express myself by spelling.

Other children could talk and I always felt left out. Now I have friends like JP and Allen that I can communicate with.

In middle school, pretty girls post messages to handsome boys. I wish they would send me some messages so I can respond back on the Letterboard.

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I WAS GETTING MOSTLY KINDERGARTEN LEVEL EDUCATION AT SCHOOL.

My mother started to teach me 6th grade level education at home last year.

I went to see Dr. Perleberg in April. She tested me and said I was very smart.  After that my parents fought for a decent education for me.

Now I am getting a 6th grade level education in the middle school.  A good education will help me to succeed in life.

I WOULD LIKE TO BE AN ENGINEER

I like Math and Science the most. Engineers plan better products to help people.  I want to design a non-speaking kid’s application to talk.

My application would be called “THE TALKING LETTERBOARD”.

I LIKE PIANO AS WELL

Spelling on the Letterboard has helped me to find notes on the piano.

I am now in a chorus group at middle school. I love listening to the beautiful music every day. I would like to write music and songs to wish people on their birthdays and make them happy.

I ENJOY SWIMMING

Mrs Snape, my swim teacher said that I can swim like a fish by next summer.  Lots of exercise is needed daily to keep my body organized and calm.  I am also in a PE group in middle school.  I play volleyball and basketball with friends.  Sometimes, if my hands are rowdy, then I play with the coach.
I LOVE THE BEACH

My time at the beach is very precious to relax. No parents are nicer than mine since they take me to the beach many times in the year.  Most people go to the beach to swim.  I go to the beach to watch people and learn about their habits.  Not all is fun at the beach.  Hard work is part of the life.

MY FRIENDS AT THE BEACH WORK HARD CLEANING, WHILE OTHERS ENJOY.  I also work hard to be successful in life.

I STILL HAVE A DIFFICULT TIME CONTROLLING MY HANDS.

My body feels out of control a lot and it is very uncomfortable. I have so many impulsive surges of energy and it is painful to experience discomfort.

I am working on core strength and purposeful motor planning to make my body stronger and control hands better.  I hope to avoid any attention seeking behaviors by keeping my body posture and core strength foremost on my list of improvements.

I FELT SAD FOR MANY YEARS…..

A lot of emotions, rather hate was building up inside me.

I was ashamed of my shortcomings.

I was sad to be left out of many experiences

I believe that a lot of hard things can bring about important change for the future.

Now I can talk by spelling definite thoughts.

I am now being included in certain situations.

I think now that I can convert the Letterboard communication to talking words and sentences. Words are flowing much easier for the last 4 months.

I am also trying to find the letters to type on the keyboard.

I think I can talk faster than typing on the keyboard.

BE PATIENT AND KIND AND THINGS WILL CHANGE.

 

MY MOTHER INSPIRED ME TO REACH FOR HIGHER GOALS IN LIFE.

Nothing stops her from fighting for a good education for me.

More people should be like my mother.

Her style is interesting.

My mother is beautiful because she never complains about her son to anyone.

I AM SHOWERED WITH LOVE FROM BOTH PARENTS FOR WHICH I AM VERY GRATEFUL

family

 

I love people who are respectful and who smile at me. I have made a lot of friends at Whole Foods, Target, Temple, Library and the Beach.

FRIENDS KEEP ME HAPPY AND MOTIVATED TO KEEP ME GOING FORWARD.

I want to thank Miss Jess for her incredible hard work in teaching me to spell on the Letterboard

Miss Anthonette, my nanny, has helped me a lot to practice skills daily and master them.

 

I WANT TO BE AN ADVOCATE FOR ALL NON-VERBAL AUTISTIC CHILDREN NEEDING A GOOD EDUCATION.

DON’T DISMISS KIDS AS NOT BEING INTELLIGENT JUST BECAUSE THEY CANNOT TALK.

 Non verbal kids have a lot of talents and need an opportunity to express themselves just like regular kids.

IF I WERE A PLANET, MY PLANET WOULD RADIATE THE COLOR OF BLUE IN GREAT HONOR OF THE AUTISTICS SOULS.

OTHER PLANETS WOULD SHINE ALL THEIR BRIGHTNESS ON MY PLANET TO HELP KEEP IT HAPPY.

LOVE AND SUPPORT CAN CHANGE ANYONE’S LIFE STORY”.

Field Trip Report to Destin, Labor Day 2016

img_1994I went to the beach with my parents.  No parents are nicer than mine because they take me to the beach many times in the year.

My time at the beach is very precious to relax.  Tasting new adventures is enjoyment at the beach.  Most people go to the beach to swim.  I go to the beach to watch people and learn about their habits.

Not all is fun at the beach.  Hard work is part of the life.  My friends work hard cleaning while others enjoy.  Hard work is always a job well done in life.

I also work hard to be successful in Life.

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Rishi has been listening all these years

Rishi works with a RPM coach, Jess Sibley weekly on middle school level reading comprehension.  Here are some answers that he provided in the last few months that made me realize how intently engaged he has been in the world around him all these years.

What is the Periodic Table – THE PERIODIC TABLE IS A CHART THAT SHOWS ELEMENTS THAT ARE CHEMICALS.

Can you tell me what the “Draft” was? THE DRAFT WOULD RANDOMLY SELECT AMERICANS TO FIGHT IN THE WAR.

What is a blog? BLOGS ARE ONLINE FORUMS WHERE PEOPLE WRITE ABOUT DIFFERENT TOPICS.

After waiting 12 long years

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Rishi is my 12 year son who has been silent for the majority of his life due to autism.  Finally few months back we started RPM( Rapid Prompting Method) where he can spell out words and sentences on a alphabet board.

What a revelation!  Found out he is super smart, maybe gifted.  He is also very eloquent and succinct in his language and his views on various topics.  He is sensitive and funny as well.  This blog is dedicated to Rishi’s newly found life and voice and also to millions of autistic children who are still trying to find their voice.  I found out I have a lot to learn from him about love, life and everything else in between.  Happy reading interesting quotes from a  child who has been newly discovered by the world around him.

Excerpts from our conversation on 8/25

Who do you think is beautiful

MAMA

Why do you think that?

MAMA IS BEAUTIFUL FOR HER SON.

How is that?

MAMA NEVER COMPLAINS ABOUT HER SON TO ANYONE.

What do you want people to think when they see you?

THEY SHOULD SEE A SMART BOY, KIND AND FUNNY.2015-08-06 10.02.58